DoctorJohnPayne.com
:: Home :: Blog :: Articles :: Photos :: China Trip :: Contact us       
 

MY TRIP TO CHINA | APRIL 7th UPDATE | APRIL 14th UPDATE
 APRIL 22nd UPDATE | APRIL 27th UPDATE | APRIL 22nd UPDATE | MAY 2nd UPDATE

Home Again, Safe and Sound!

Click Here for Pictures from the Trip!

My Trip to China, My Great Hope
by Dr. John Payne

China it is my great hope. During the last 20 years, I have suffered many neurological problems. During the last two years I have been diagnosed with spineocerebellar ataxia . In the United States , there is no stem cell program for this condition. At the present time, China has a stem cell program for the treatment of this..

In 1987 I had severe neck pain. An MRI showed that I had a herniated disc at C4/5 and C 5/6. The disc at C4/5 was so large that it had flattened the spinal board. I then had a diskectomy at both levels along with an anterior fusion at both levels. When I awoke, I had paralysis of the left anterior deltoid and biceps. By using physical therapy for over three months I could finally lift one pound with my left arm.

Over the next year I gradually improved until the function of the arm was almost normal. However, in 1992, I was stopped at a red light when a car going 35 to 40 miles per hour struck the rear end of my car. I started having neck pain immediate3ly.An x-ray showed t that the fusion at C5/6 was broken. An MRI demonstrated a herniated disc at C3/4and at C6/7.

In August, 1993, Dr. Henry Bolhman at University Hospital in Cleveland , Ohio , did an anterior decompression from C3x to C7 followed by the insertion of a fibular bone graft.. I gradually improved and in one year had an excellent result with normal strength and balance.

In December, 1996, I developed severe weakness in my legs along with loss of balance. A diagnosis was not made. All laboratory studies were within normal limits. After six weeks this weakness in my legs returned to normal and the loss of balance improved considerably.

In a November, 1990,I had cardiac bypass surgery. Following this, I suffered a recurrence of the weakness and loss of balance in my legs. I was told by my surgeons that this was not unusual following it the harvesting of vein grafts. After waiting one year for return of function,. I saw Dr. Linton Hopkins at Emory University . He thought that I had suffered a cerebellar stroke during the bypass surgery. However, an MRI of the brain showed no sign of a stroke. An MRI of the cervical spine demonstrated continued stenosis of cervical spinal cord in spite of the surgery Dr. Bolhman had performed for this problem. A posterior decompression from C2 toC7 was done.

After this surgery. I continued to have weakness in my legs and loss of balance. I had to retire from the active practice of orthopedic surgery. Multiple MRI’s and CAT scans of the cervical spine showed that the cervical cord had returned to normal. In spite of this, I continued to get worse. Finally, Dr. Jed Lewis made a diagnosis of spinocerebellar ataxiaS in 2006.

Dr. Zack Hall who was a high school, college, and medical school colleague has had recently been appointed as head of the California Institute of Regenerative Medicine byvernor Swartzneggar.He is responsible for issuing grants totaling $3 billion over the next 10 years under California's stem cell program. I talked with him and found the spineocerebellar ataxia is so rare that it has attracted very little interest in these stem cell field in the United States . Zach referred me to Dr. Huda Zoghbi in Houston , Texas . Dr. Zoghbi is a professor in the neurology department at Baylor School of Medicine as well as a Howard Hughes Institute investigator. Dr. Zoghbi had me undergo many blood and urine tests. All of these were normal, indicating that there was not a medical solution for my form of spineocerebellar ataxia..

For this reason, I began scanning and searching the Internet to find a program of stem cell therapy for this degenerative disease. After a prolonged search I found that China had treated more patience with spineocerebellar ataxiia than any other program. I was also able to talk to patients in Canada , who had been treated in China..

At this time, I am preparing to go to China on the 28th of March. My goal is to be able to walk 10 to 15 yards without assistance of any kind. . If I were able to do that, I would be able to return to a part time practice of office orthopedics. I greatly miss practicing and seeing patients. Even if I made a full recovery. I would never be able to return to surgery as Archbold Hospital has age restrictions that one cannot carry out surgery after the age of 70. I think it is ironic that you cannot carry out surgery after the age of 70 but Archbold requires you to take call in the emergency room and stay up all night multiple times until one is 62.

My ultimate goal would be to return to playing golf. I miss the chatter and kidding that takes place among golfer. On a golf course there is a definite camaraderie among participants, regardless of age. Though he is now dead, I can remember Bobby Wilson playing. Even at the age of 85, he was joking constantly with his dry wit, poking fun at himself as well as the group and having a wonderful time doing it.

Stem cells may not help, but I will know that I have tried everything to battle this degenerative disease

MY TRIP TO CHINA | APRIL 7th UPDATE | APRIL 14th UPDATE
 APRIL 22nd UPDATE | APRIL 27th UPDATE | APRIL 22nd UPDATE | MAY 2nd UPDATE

to top

China Trip April 7, 2007 Update
by Dr. John Payne

Our trip to China has been both eventful and pleasurable at the same time. We left Atlanta after both having a cancelled flight and delayed flight which caused us to be over three hours late arriving in Chicago . We thought we had missed our plane to Tokyo but that plane was also delayed by three hours due to the terrible weather in the windy city. Once our transoceanic flight began we were treated royally by the American Airline personnel who provided us with excellent food and care. Arriving in Tokyo American personnel had us directed immediately and we were able to make our connecting flight to Hong Kong . The Japanese were again excellent and had a bowing contest with Will at the end of the flight. The head flight attendant kept bowing to Will and he returned the favor after a few seconds Will stopped first and the contest was finally over.

A small wheelchair attendant met us off the plane in Hong Kong . Both Will and I had our doubts that she would be able to push so much weight through the airport. To our surprise she was able to push us through Customs and Immigration without slowing down. We then traveled through one of the most beautiful airports in the world and exited to meet a driver from the hospital who had been waiting for three hours. He rapidly placed us in his van and started through Hong Kong where they drive on the wrong side of the road, like the British. However, when we reached Schenzen he had to switch to the right side and start driving like an American. This was now after midnight . The hospital provided us with accommodations at a luxurious hotel across the street from the hospital. The service was superb as we were served a warm snack in a dining room while our room was prepared for us.

The next morning we were taken to the hospital by wheelchair and foot. Once reaching the stem cell treatment floor we were gratified to see such modern design and cleanliness. The staff immediately began taking excellent care of us. Within two hours we were seen by a young female physician who spoke some English. She carried out an excellent neurological examination and ordered physical therapy to begin that afternoon. Blood tests were also drawn and I was given my first stem cell growth hormone I.V. injection. These were to be given daily in an attempt to stimulate to form the neurological cells that had degenerated in my cerebellum. The physical therapist started a routine that is aimed at improving the patient’s balance. That night we ate in the café which is one the hospital’s first floor. As I have explained to some of my friends the hospital does not provide food. Will has now become the number one chef of room number 1420 as we do not wish to try the hospital’s café again.

Saturday continued to be an extremely busy day with multiple routine tests done. These included both an echocardiogram and an ultrasound of my heart. While lying on the exam table for these to be done, the young female attendant who was accompanying us tapped my belly and made the comment that I must drink a lot of beer. I was so flabbergasted that it took me least thirty seconds to respond.

Physical therapy continued on Saturday with one in the morning and one in the afternoon. The afternoon session consisted of traditional e-stem to the quadriceps and the anterior tib. This was followed by traditional Chinese medicine. The treating therapist placed needles in both my arms and legs. I knew then what acupuncture really means. After the session was over we had the rest of Saturday and Sunday off. We needed to catch up on jet lag so we did not go sightseeing on Sunday. We were just too tired.

On Monday the routine began again. As in America , the head of the department saw me on Monday, three days after my arrival. However, he was extremely thorough though we had some problems with the language barrier. Again the therapists concentrated on balance along with reciprocal movements. I was in the parallel bars or on the balance board for what seemed to be hours. After this I had been scheduled for OT for the tremors in my hands. This went nicely. A speech therapist was to work with me on my voice but cancelled this when she realized I had a titanium plate in my neck.

The next day was the start of Chairman Mao’s revenge as far as Will was concerned. My activities were the same but Will went out for vegetables. He decided to eat a salad for lunch. The women on the floor thought he was crazy for eating anything raw. Will laughed at them and we went out for dinner that night. A Scottish couple was leaving the next day. He had come with ataxia and on a walker like me. He was walking out of this hospital. We went to an excellent Italian restaurant with great food and superb wine. All during the meal Will was most enthusiastic. After we came home, Will was fine until about 6 in the AM. Chairman Mao then caught him and he started running from both ends. Wednesday was probably one of the worst days of his life. He tried to continue to help me in spite of his disease. Initially he tried to blame it on the Italian food but he soon realized he was the only one sick. About the middle of the day he suddenly thought about the women who thought he was crazy to eat raw food. All vegetables in China must be cooked in some fashion. Finally after a great deal of Pepto and Immodium he triumphed over his distress.

While Will was ill I consumed peanut butter sandwiches and bananas. I could not go anywhere and did not have enough sense to ask one of the women on the floor to order for me.

On Thursday I received my first stem cell injection. I slept through most of it as I was fatigued from the previous two days. Will was feeling better and went to the hospital café and obtained a sandwich. I ate only half of it, but on Friday it gained my attention. I did fine in my morning physical therapy, even walking without hands in the parallel bars. My afternoon treatments were interrupted by sudden urges. I was forced to the Immodium bottle. That night Dora, one of the Company employees, ordered for us. In spite of our difficulties, I had eel while Will had dumplings. It was the best food we had had since Tuesday night.

Saturday is just another day in China . We started in physical therapy again this AM. Dr.Yong, the chief, again evaluated me early in the session. I think he may be as confused as the doctors at home. I think I just have a mixture of diseases and not a straightforward one. Anyway, therapy continued with me walking in parallel bars and then on a treadmill. When I walked on the treadmill without holding on, I thought I would break my head or my ass, I wasn’t sure which one would go first. In the afternoon I received my first treatment for my voice with acupuncture since they could not use the other machines on me. I felt strange submitting to this, but I am to the point that I will try anything that I do not believe is going to harm me.

At the end of the first week I am encouraged. I have seen many ataxic patients who are much younger than myself who have made dramatic improvement. All of these had the inherited type. I just hope that the acquired type will respond as well.

I am scheduled for my second stem cell injection on Monday It will be the first one given intrathecally. Hopefully my response will be as good as those with the inherited type.

MY TRIP TO CHINA | APRIL 7th UPDATE | APRIL 14th UPDATE
 APRIL 22nd UPDATE | APRIL 27th UPDATE | APRIL 22nd UPDATE | MAY 2nd UPDATE

to top

China Trip April 14, 2007 Update
by Dr. John Payne

The second week in China has been similar to Ray Milland’s Lost Weekend back in the fifties. The only trouble is this was not induced by alcohol.
 

Last Saturday night Doctor Yang came to the floor and wanted to speak with me. At nine o’clock he took me to the conference room and started to explain things about the diagnosis of spinocerebellar ataxia. The ward is filled with patients with SCA from all over the world. He said that my x-rays did not fit the pattern nor did my physical findings. He showed me x-rays of most of the patients on the floor and the images were entirely different from mine. My cerebellum was intact ant there was no atrophy of the brain stem. He then went over my physical findings which indicated I had difficulty from the old spinal cord injury. He also pointed out the physical findings that pointed towards my brain rather than rather than the brain stem. He then started reviewing all my x-rays making digital pictures of important ones. Finally he scanned my brain MRI that was ordered by Dr. Hopkins of Emory in 1999. Dr. Yang was surprised that no one saw the multiple small infarctions in the brain. The infarctions are due to the diabetes and the bypass technique that was used. In his view an MRI should have been done the next day when I had extreme difficulty walking. He was impressed with Dr. Frederick’s posterior decompression, but he did not think much of Dr. Bohlman’s surgery that was done in 1993. He thought the alignment was poor and that this placed excess pressure at C6/7 and predisposed the cord to myelomalacia. However, the main problem was the multiple small infarcts in the brain caused by diabetes and reduced blood pressure after bypass.


He recommended that I still try the stem cells though they were not as successful in infarctions as in SCA. He also wanted me to be evaluated by a neurologist from Mongolia on Tuesday. We talked until after midnight. For some reason he could understand my English and what little Chinese I had picked up. I was able to understand his English. He is chief of the stem cell department as well as chief of neurology. For this he is paid 10,000 RMB per month which is about $1400. I wish I could bring him with me as he really cares about patients.


Sunday was to be a day of rest. The Chinese work six days each week and do most of their shopping on Sunday. We took the day off and went to some of the malls. Buying anything is an experience. You immediately start at one quarter of the price that is quoted and bargain from there. You even walk off and have them come after you. Will was buying some tea and the small salesgirl disappeared. We waited and then left. Within ten minutes she found us in the massive throng. When we want back the girl served Will several different kinds of tea making up for a Chinese faux pas and enticing him to buy many more kinds of tea. He even had our picture taken with them and was about to invite them to dinner.


Our next stop was to be the nicest restaurant in the mall. We went to the fifth floor where the restaurant was very colorful with pink curtains and pink tablecloths. Even the waitresses wore three buttoned coats which were the same color. The head waitresses had a take off of a tuxedo or very formal wear. After being seated will and I enjoyed our first gin and tonic inside the Republic of China. After battling the throngs that we did we should have four or five more to quite our nerves. The head waitress then took our orders. Everyone was wise except me. Will and the others in the group mainly ordered cooked vegetables specialties. The waitress explained to me that Peking Duck was one of the specialties of the house. Thinking that a duck in China was similar to a duck in America I ordered the supposed specialty. All of the veggies were served and we were definitely enjoying them. The chef then came down the main isle of the restraint pushing a cart carrying this glazed roasted duck. He then carved the duck in a manner that was unknown to us poor Southern American rednecks. The carving of the duck was very strange as he mainly removed the skin and the quarter inch of meat directly under the skin. The main portion of the duck was taken away and the skins along with some small pancakes were placed on the table. Will ate one piece and then decided Peking duck was for Mao and Nixon. My first taste was something that I had never experienced. It was as if I was eating pure cholesterol. I then folded the duck into a couple of pancakes and ate two of these. After that I decided I could eat two more. The others in the group pronounced themselves vegetarians after seeing what had been done to the duck. We left without taking a doggie bag.

We finished shopping and returned to the hospital in a van. The drive back was very exciting as the Chinese are more daring and have better nerves that any of the New York taxi drivers. After missing collisions with two or three of the buses and multiple vans we arrived back at the hospital alive. I felt queezy but I thought this was due to the ride and terrible pollution. However, thirty or forty minutes after I was in my room I had an attack of Chairman Mao’s Revenge that was probably enhanced by Chou En Liai. I have never experienced such diarrhea in my entire life. While sitting on the porcelain throne I suddenly began belching from the deepest recesses of my gut. Will was barely able to retrieve a covered trash can to place before me. For the next ten minutes I did not know whether the strongest stream came through my esophagus or through my large bowel. After approximately two hours of this the nurse called an intern to evaluate me. It was a good thing that Will was with me rather than Mary Ellen with her sympathetic vomiting reflex we would have needed two porcelain thrones in the room -- one for me to be seated on and one for her to hug. I kept murmuring and begging for phengeran, wishing I could say it in Chinese. Instead of a muscle injection he ordered the nurse to give me three pills. We had already tried to swallow some Imodium but I could not keep these down more than just a few seconds. He quickly left before the nurse gave me the pills, unfortunately the Chinese pills have the same effect on me as the Imodium. Diarrhea and vomiting continued for the next eight to nine hours. Finally around seven thirty the following morning I received an injection of phengeran. After this I thought I might live but I did not know if it would be worth it or not.

I was unable to attend physical or occupational therapy but I did receive multiple I.V.’s trying to re-hydrate my dried depleted body. The next day I was able to go to occupational therapy but the work in physical was out of the question. That afternoon I was scheduled for my second stem cell injection which could be given if I was not running a fever and had a normal white count. My temp. stayed normal all during the day and my white count was below nine thousand and so I received my stem cell injection that afternoon.

On Tuesday, Doctor Yang brought in a consultant. Looking at her I thought that I was seeing the reincarnation of Genghis Kahn. She was obviously from Mongolia with the highest cheek bones I have ever seen. Her hair and eyes were piercingly black. She did not speak English but spoke to me through an interpreter. She then performed the most thorough neurological examination that I have ever experienced. After she had finished the doctors retreated to the conference room again looking at all of my x-rays. She agreed with Doctor Yang that the main problem stemmed from diabetes and its effects on the arteries in my brain and nerves in my feet and hands.

She agreed with the treatment giving me I.V.stem cells at the present time. She did mention that there was another hospital in Northern China which specializes in the treatment of diabetic foot and hand with stem cells. Will and I had already seen pictures of cures of diabetic foot and leg where the patient had been treated with stem cells. These were limbs that would have ordinarily been amputated. Though I do have diabetic neuropathy and early vascular changes I would rather wait to have this treatment on a later date. On Wednesday and Thursday, both physical and occupational therapy were subdued. The therapists took pity on me and kept it very light. On Thursday night I thought I was starting to join the living and went to the Italian restaurant again. Will had lasagna while I had salmon fettuccini with very little cream. I was able to eat about a third of this before feeling nauseated. The food was so good we did use a doggie bag and Will was able to enjoy it for lunch the next day.

Friday was the beginning of a good day. The therapist worked with me in the morning but the afternoon was devoted to me receiving my third stem cell injection. During the I.V. injection Will and I noticed that I again became extremely light with a blood sugar level of thirty eight. What was ironic that during the second infusion of stem cells my sugar level had dropped to forty one. Whether any of these stem cells are working to produce insulin is a mystery to me. The ordinary treatment for diabetes is to aspirate your own bone marrow and culture autologus stem cells and then inject them into the blood supply of the pancreas. However I have been using about half of the amount of insulin that I usually use at home. So maybe something good is happening.

I am extremely happy I am receiving I.V. stem cells rather than intrathecal stem cells. At least three of the patients have had severe post spinal headaches. In America these patients would have been treated with a blood patch over the hole in the spinal membrane so as to stop the leakage of the spinal fluid. This will stop the severe headache and projectile vomiting that some of these patients endure. In China no one seems to know about a blood patch. They just put the patient flat and give them multiple I.V.’s hoping sooner or later the hole will heal on its on.

On Saturday Will became the center of attention in the physical therapy department because of neck discomfort he wanted traditional Chinese medical treatment. The therapist had large clear glass cups that she heated with some type of gas flame. After heating one of these she would apply it to Will’s upper back. Glancing over at Will it looked as if he had several glass telephone insulators attached and aligned down his back. After approximately fifteen minutes she removed the cups and had Will sit up and then inserted an ungodly number of acupuncture needles in his upper back and neck. I thought I looked strange when she inserted three needles under my chin but I could not match Will. Every ten minutes she would come in and twirl the needles a quarter of a turn adjusting the intensity. After at least thirty minutes she finally removed the needles and Will claimed his neck felt much better. To me it was like having someone remove their finger from pushing on my eye. I know that it would feel better.

My therapy was better on Saturday than it had been all week long. I really believe I lost ground. I am hoping I will be able to make it up our last two weeks here. The one thing I did notice after the third stem cell injection was a much better feeling in my legs and feet. Hopefully this will continue.

The one thing that I would urge anyone who is coming here is to bring their own phenergan injections and know how to give themselves an I.M. injection or teach their care-taker how to give an I.M. injection.. It will save you hours of misery.

MY TRIP TO CHINA | APRIL 7th UPDATE | APRIL 14th UPDATE
 APRIL 22nd UPDATE | APRIL 27th UPDATE | APRIL 22nd UPDATE | MAY 2nd UPDATE

to top


to top 

China Trip April 22, 2007 Update
by Dr. John Payne

Our third week began with a day with no therapy or other responsibilities. We had talked to one of the girls who helped with the translations between us and the medical personnel , Cherry, who is a 28 year old intelligent beauty and she agreed to meet us here at the hospital at 9 A.M. and take us to the local tea house.

We were soon in a taxi racing through crowded streets. The Chinese work six days each week so the city is very consumed with people escaping or enjoying them selves on Sunday. After about thirty minutes, we reached a building across the street from a railroad station. To my consternation, there were two long flights of stairs. As I looked, I told Will that I was going to find out if my improvement was real or not. I got out of the wheel chair and walked to the second floor holding to the rail with my left hand. When I made the second floor, I wanted to let out a yell that would equal any of my children’s college chant “War Eagle”

After we gathered things back together, we started an exploration we will never forget. There were teas of every kind throughout the floor. After looking at one store, we stopped to inspect different teas that were in large bags that looked like burlap sacks from home. The women running the shop immediately brought out different types of tea and prepared them in the usual Chinese fashion. The small cups conquered my palsy so Will and Cherry had to hold my cup as I drank tea for headaches, abdominal pain, and rheumatism. After 45 minutes or so we moved on. In America, if someone spent that much time with you, they would be angered that they had not made a sale. Instead she just smiled and asked us to come back after looking around.

We looked at multiple teas smelling all of them. Cherry then brought us to a stall where they served Jasmine tea. This was delicious, and the small tea leaves had been wrapped by hand in the form of a ball. When this was dropped into water, the ball opened presenting a beautiful flower along with an excellent tea. The young lady told us tea was like whiskey, the longer it aged the better it was. She then prepared some tea that was eighteen years old. I agreed with her that this was some of the most delicious tea I have ever tasted. Will, Cherry and I bought tea at this stall along with some small items.

We continued our tour inspecting teapots that were valued in the thousand of dollars in spite of the great exchange rate. This is one of the few places in the world that the dollar is still worth something. Cherry’s friend had arrived at her stall where we bought some items for relatives at home. We then received an excellent 25 year old tea that was superb. We continued to chat until about noon when we finally decided we needed lunch. The trip down the steps was easy and many people helped with lifting my wheelchair to the street so we could catch a cab.

After a short distance, Cherry dropped us at a mall. Just entering, I could not believe the architecture and lighting. It is probably one of the most beautiful malls I have ever seen. Will and I wandered around shocked at the stores. There were no Chinese stores, all were branches of German, British, French, Japanese, or New York companies. I also could not believe the prices; for after you divided by seven, the price was higher than New York. The tariff the Chinese place on foreign goods is tremendous. However this is not slowing the consumers. Most of the stores were extremely busy while there are Mercedes and other luxury cars everywhere.

Cherry had instructed us to go to the fifth floor to find restaurants. There were many but we decided on a beautiful Thai restaurant. The food was excellent and again very cheap compared to the same thing in America. We them resumed our trek through h the mall amazed at all the different stores and countries represented. Looking over the balcony of the fourth floor, we saw one of the most beautiful in door ice skating rinks in the world, easily equaling Rockefeller center. The rink was on the third floor. Will really wanted to skate, but there was a line of Chinese at least two blocks long.

I suddenly began to have the sniffles, probably catching a cold just being that close to the ice. We returned to the hospital and had our peanut butter sandwiches for supper since we had eaten so much at the Thai restaurant.

The Monday was typical. Physical therapy started with no new exercises but plenty of balance board work. We were also working in the parallel bars without hand support. Finally, I advanced to a slow treadmill which was the pure devil trying to walk on without holding on. This fatigued me faster than anything I had tried so far. The afternoon was a repeat of previous afternoons of acupuncture and nerve stimulation. That night we again traveled to SeaWorld and were able to discover some delicious Lebanese food. At least it agreed with my stomach. We spent an enjoyable evening talking .with a young Chinese waiter, Jason, about the history of China and the US. For someone who had wasted three years of his life playing computer games, he sure knew a great deal about his country and its relations with America.

Tuesday was a typical day in Shenzen. We awoke with a wonderful breeze off the ocean but it was still cloudy. Our breakfast was usual with Will feasting on the Lebanese leftovers of the night before. I had my usual peanut butter toast and diet Coke/. Not healthy but I don’t get sick. Rehabilitation was the same with me becoming angry because there is not enough of really forceful therapy. I firmly believe that if you are retraining muscles or using those you have not used during an extended period it will take forceful therapy to improve the function. I just can’t get this idea across. I am going back to the gym and doing work on my own. When this is not permitted I feel angry because of the time and money I have put into this.

Will backed the hospital on this so I was really miffed with him. After rehab that afternoon, I wanted to get a hair cut. We walked about three blocks from the hospital and found a barbershop. As we walked in we were immediately taken to a chair. A purple gown was wrapped around us and a young girl began washing our hair. After ten minutes or so, Will walked but I was taken to a bed. There was a padded collar to support the neck and further washing and rinsing continued. I thought this might be special for the dirty Americans but I noted that all customers were treated the same. After thirty minutes of this, she moved me back into a chair. There she began to massage my head, neck and shoulders. This lasted for about twenty or more minutes. At this point Will was finished, but I then sat while the barber cut my hair. As I watched, Will paid the bill which was $4 for him and $7 for me. I have never felt so good after a visit to a barber shop. That night we ate in the hospital telling everyone about our good fortune.

Wednesday I was supposed to receive an injection of stem cells. For some reason this was delayed and I was rescheduled for Thursday. The day was the usual rehab with nothing breaking the routine. That night we decided to go into SeaWorld again. I think that I have described the area before. Helen and Eric went with us to a fantastic Japanese restaurant. Unlike the states, you were given a menu that was at least sixteen pages long. You had a much wider choice than chicken, shrimp or steak. We could pick out mussels, oysters, steak, or just about any food and it was prepared in front of us. For the grand sum of $15 you could have all you could eat and drink. Eric had been having severe muscle spasms. The beer quieted theses and he was able to get the best night of sleep that he ad in ten days. Will just continued to order steak after steak. The poor boy had not touched beef in weeks. We did skip the flaming ice cream dessert.

The ride back to the hotel was great as usual. These guys are the most courteous and competent of any drivers that I have ever seen. In spite of heavy traffic and high speeds, I have yet to see road rage from anyone.

Thursday was again a typical rehab. The morning was short as I had only thirty minutes of physical therapy. I still believe in the axiom of no pain, no gain that is not the manner of things here. That afternoon I received my fourth stem cell injection so I remained quiet that evening. Will went out and brought back some more Lebanese food.

On Friday we resumed physical therapy with a vengeance. I was able to stay on the balance board for almost three minutes. I also walked unaided in the parallel bars. I really want to try to walk in the room without the bars.

That night we had probably the most fun we have had in Shenzhen. We went to a local seafood restaurant only three blocks from the hospital. The bead of our contingent spoke Chinese and was able to immediately get us a table using my diabetes as an excuse. My sister used the same routine in Biloxi. We were served food immediately and after a few bites we needed to go examine the tanks and pick out the fish we were going to eat. I picked out a grouper while a Hong Kong friend decided on another white fish. The fish was cooked with steam never touching the water. When it was almost done it was placed on a plate. Hot oil containing ginger and scallions was then poured over the fish to finish cooking it. This was some of the most delicious fish I have ever eaten.

After dinner the crowd decided to explore the night life of Shenzhen. I was going to beg off as they had to push me in a wheelchair. At the cabaret, the people rushed out to lift me up the steps and place me on a stool. I think they thought I was a rich Arab. I could not believe a seventy year old man in a wheel char being treated so well. The Chinese have a respect for age that you never see in the states. After a while the crowd brought me back to the hospital. Will continued with the group exploring Chinese discothèques. He had a great time but returned long before the others.

Saturday was quiet with the usual physical therapy as well as acupuncture. Though Will believes that it helps, I feel it as a time to nap. Saturday night we ate in the hospital on some leftovers and more Japanese food. Sunday would be the start of our final week.

MY TRIP TO CHINA | APRIL 7th UPDATE | APRIL 14th UPDATE
 APRIL 22nd UPDATE | APRIL 27th UPDATE | APRIL 22nd UPDATE | MAY 2nd UPDATE

to top 

 
China Trip April 27, 2007 Update
by Dr. John Payne

Sunday of our final week was nice. We were able to sleep to nine o’clock rather than getting up at six or six thirty. After a prolonged breakfast of cereal or peanut butter toast we decided to go to the railroad mall to finish buying souvenirs for folks back home. The taxi drive was swift, but as we neared the mall the line of taxis was at least six blocks long.

We finally reached the mall which also serves as a rail station and metro station. There was enough English on the signs that we did not got lost. We knew where we wanted to go and arrived there quickly. The girls running the stall remembered us. After picking out numerous souvenirs, the head girl gave us a price. Will has taken lessons in bargaining and offered not one half, but one third of what she had asked and held to it. After long bargaining, we obtained then gifts for what Will first offered. We then visited a second stall. Again, Will bargained like a true Chinese. We had finished our shopping and returned to the hospital.

Will and I had been suffering from colds so se again stayed in the hospital. One of the nurses again ordered supper for us. It was delicious and I again did not get sick from the food. I wish that I had never ventured to eat that duck.

Monday was to be my first spinal injection of stem cells, the rest being IV. We did go to physical therapy that morning and things wet well. If you are going to have stem cells that day, you do not go to therapy that afternoon. Also they do not wish you to eat after twelve noon. I did continue to drink a great deal of water. At about 4:15 they wheeled me into a modified operating room. The doctor showed me the needles they were using. They were 22 gauge needles so I agreed to go ahead with the procedure. I never knew the needle went in and the stem cells were soon injected. The procedure took less than fifteen minutes. IK was then wheeled back to my room where I was to stay flat for six hours. Will went out to socialize and the IV ran out. The nurses had to stick me again which hurt worse than the spinal Will went out to dinner with Cherry and Dora. I stayed flat but was unable to force fluids because of the position of the water bottle. Also I could not reach the nurses” button. Will returned with frog legs and rice soup. I was more interested in water and getting up to urinate. Will was concerned that only five hours had elapsed and wanted me to at least try to pass my water while in bed. I haven’t been able to do that since I was a teenager. I stood up and stayed up. Fortunately I did not get a spinal headache.

Tuesday was a terrible day. We awoke to thunderstorms and it rained all day. My morning therapy went well and I am going to get a cane to start using. I still could not turn rapidly but I could walk over 100 feet using a cane. At lunch two spine specialists from the states were visiting. I explained that my head tremor was better, that my legs especially my feet, felt much better. I explained that I had tried to use a cane at home but was unable to balance or walk with it. Now I was able top walk short distances without anything. This afternoon was the usual rehab. Since it was raining so hard we again had one of the nurses order for us.

One of the most remarkable cases has been a 39 year old Canadian. When he arrived Sunday he could walk but he would bounce off the walls. On Monday he could not go up and down stairs without holding on to both rails. He had his first injection on Monday afternoon, and on Tuesday he was walking in a straight line, going up and down stairs without holding on, and could get out of a chair with ease. A spinal injection of stem cells had been done on Monday. The results so quickly were astounding. Most cases are not like this but it is great to see one with such joyous results.
 

MY TRIP TO CHINA | APRIL 7th UPDATE | APRIL 14th UPDATE | APRIL 22nd UPDATE | APRIL 27th UPDATE

to top 

China Trip May 2, 2007 Update
by Dr. John Payne

The last four days in China were as enjoyable as they could possibly be.  Wednesday morning the weather was stormy like Tuesday.  Suddenly, while I was in physical therapy, the skies cleared and the sun was finally out in Shinzhin.  The breezes also started to come off the ocean, cooling the temperatures. 

Home Again, Safe and Sound!

 Physical therapy was the same.  Jundi pushed walking in the parallel bars without any support even stepping over wooden rods placed at varying distances apart. For some reason this exercise was very tiring.  We then started playing catch and throw with a soccer ball which not only forced me to balance but tired my upper body quickly. This was followed by the balance board which really fatigued the old man.  After OT I resumed working on the treadmill followed by raised platform exercises and finally ending with squats.  The afternoon was the usual routine of electrical stim followed by acupuncture.  The latter has become my nap time.

            For dinner that night we took out my therapists.  We asked them to take us to the best restaurant in Shinzhin.  We took a cab from the hospital for a short distance.  When we stopped, I opened the door and was greeted by the sight of four lovely women in the tightest red evening dresses I have ever seen.  As they advanced towards us, our therapists waved them away.  We then went up a flight of escalators and I was greeted by about ten women dressed in the same attire as on the first floor.  I looked up and saw a sign advertising the Red Dragon Room.  I started to wonder what kind of problem these young therapists were setting up for us.  Again, they waved all of the beautiful young ladies away.  We then took an escalator to the third floor where there was a beautiful restaurant with the ladies dressed in mock tux tops and long skirts.  We had arrived at the Bar Harbor restaurant.  We then had the finest Chinese meal that we enjoyed during our stay in Shinzhin.  Abalone was superb especially since I had not enjoyed any since the early 1980’s in San Francisco .  Next we had an appetizer that was a small mussel called an elm.  Then came multiple dishes such as beef ribs, tofu and mushrooms, some type of Chinese soup with shrimp and noodles, and shrimp balls.  Finally, I guess to clean the palate, a dish of Chinese vegetables was brought.  During this entire time, Will and Jundi had been constantly drinking tea. We took a taxi back to the hospital Once we got on the elevator to the  14th floor I saw Jundi and Jade running down the hall towards the staff restroom.  As soon as we got off on the 14th floor, Will almost galloped down the hall to rid himself of all the excess tea. 

            Thursday was the usual day.  There were no changes in PT, and OT was the same. Friends from Fort Lauderdale and Canada decided they were ready for the Japanese restaurant.  The Canadians were ready for steak; they and Will ordered multiple small filets.  The steaks were delicious and everyone finally managed to get their fill. The owners of the restaurant finally brought a sign and pinned it on Conrad’s father’s chest.  The sign proclaimed him as the world’s greatest beef eater. We made it back to the hospital late.

            Friday was to be my last stem cell injection.  I planned to undergo a spinal injection, but my thoughts turned me towards an IV.  The spinal injection on Monday had been very easy thanks to the young Dr.Yang.  However, as I thought about it, all I could think about were complications.  If I were to get a spinal headache, then our flight home would be delayed.  I would never board a plane with a spinal headache. Also I evaluated the last four days and could not determine that the spinal had given me greater relief than the intravenous.  I was so anxious to get home that I decided not to take a chance and went with the IV route.

            Will had planned to go to a local DJ’s club but decided that he was too tired.  Also Irene the nurse had continued to turn down his offers to take her dancing.  He went to watch a movie, forgot about dancing, and fell asleep on the couch in the common room.  Sometimes during the middle of the night, he made it back to the room.

            Saturday was to be our last day in China .  Will had finished most of the packing that morning with just a few odds and ends to pack that night or early Sunday morning.  I had my last breakfast of yogurt and peanut butter toast.  Sounds terrible, but it did not make me sick.  Will finished his cereal.  We headed to PT; it also was unchanged from any other day.  During lunch Will finished putting food in the common room or giving it to other patients.  Some were really glad to get such items like mashed potatoes.  W e also gave away a great deal of popcorn.  After eating leftovers for lunch for the last time we headed to my last day of acupuncture.  Though Will believes in alternative medicine, I stayed with the traditional Chinese medicine to follow the routine.  I took my last nap with needles inserted in my arms, legs, and chin.  When I awoke, all needles were removed.  We said our final goodbyes to all the therapists and returned to our room. My haircut two weeks ago had been one of the most enjoyable experiences I had in China . I convinced Will that we needed to return to the barbershop.  However, as we started to leave, Lillie, Will’s ideal Chinese woman, came to our room.  Before I knew it, I thought he was going to stuff her into a bag to take home.  Suddenly, we had multiple pictures.  After much coaxing, Will and I left for our last exotic experience in China , the barbershop. The routine was the same as before, and left both of us with warm feelings towards the Chinese.  We then joined friends from Canada and the US for an Italian feast in China .

            After returning to the room, Will finished our packing except for shaving equipment.  We awoke the next morning at four, showered, shaved, and finished packing everything.  Our driver appeared about twenty minutes early, so we left at 4:40 .   Maggie the nurse saw us off following us and giving last minute hugs at the elevator.  Kevin, a patient from Australia who now lives in Thailand , had left at two AM .  It seemed a little depressing that we were not able to see so many of our new friends at the last minute.

The early arrival of the driver proved that someone was watching over us. It took nearly thirty minutes to pass the initial checkpoint between mainland China and Hong Kong .  Once through all the checkpoints w e went straight to the airport.  Air Japan said that our plane was getting ready to leave.  Our flight three hours later had been cancelled.  They held the plane until we boarded, closed the doors, and pulled away from the gate.  We then started our trip to home which was halfway around the world.

The flights were uneventful and Mary Ellen met us at the Atlanta Airport at 9:35 .  I showed that I could now walk a small amount which thrilled both ME and Neill.  ME then drove us back to Thomasville , arriving at 3:30 AM .  We were asleep for about three hours when ME received a call that her Mom had been taken to the hospital.  ME then went to the ER where she learned that her mom had taken a dive from her bed and had broken her clavicle, two ribs, and the humeral head.  ME brought her home and she joined me as another cripple. 

As I evaluate my experience in Shenzhen I marvel at the work that is being done. To watch the MS patients, the spinal cord injured patients, and those with Spinocerebellar ataxia, I cannot believe the progress that some make.  Others seem to change very little, but these are in a minority.  The doctors, especially Dr. Yang, are superb clinicians making sure they are treating the correct disease. The nurses are very competent and try to make every procedure as painless as possible.  I do think that a protocol should be printed out so everyone knows exactly what to expect rather than having to repeatedly ask the nurses.  I also think that someone like Dora who has excellent English should be trained in medical procedures she could provide better communication between staff and patients. She would also be able to monitor the medical information given out by the patient representatives. From a personal view point, Dora could get things done when no one else was able to do so.

I accomplished my personal goal of being able to walk a short distance without help.  I hope to improve over the next three to four months through continued therapy.

The stem cells have definitely helped.  I have much better sensation in my feet and better strength in my legs.  I feel stronger and have more energy.  With the treatment that is being carried out in Northern Chinua.  I hope to have treatment there later this year. If they would send me directions and stem cells maybe I could treat myself.

The most disappointing part of the trip is that it contributes to a negative perspective of science in our own country.   From what I have seen we are probably ten years behind the Chinese. 

MY TRIP TO CHINA | APRIL 7th UPDATE | APRIL 14th UPDATE
 APRIL 22nd UPDATE | APRIL 27th UPDATE | APRIL 22nd UPDATE | MAY 2nd UPDATE

to top 


Copyright ⓒ [2007] [DoctorJohnPayne.com]. All rights reserved