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MY TRIP TO CHINA
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Again, Safe and Sound!
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My Trip to China, My Great Hope
by Dr. John PayneChina it is my great hope.
During the last 20 years, I have suffered many
neurological problems. During the last two years
I have been diagnosed with spineocerebellar
ataxia . In the United States , there is no stem
cell program for this condition. At the present
time, China has a stem cell program for the
treatment of this..
In 1987 I had severe neck pain. An MRI showed
that I had a herniated disc at C4/5 and C 5/6.
The disc at C4/5 was so large that it had
flattened the spinal board. I then had a
diskectomy at both levels along with an anterior
fusion at both levels. When I awoke, I had
paralysis of the left anterior deltoid and
biceps. By using physical therapy for over three
months I could finally lift one pound with my
left arm.
Over the next year I gradually improved until
the function of the arm was almost normal.
However, in 1992, I was stopped at a red light
when a car going 35 to 40 miles per hour struck
the rear end of my car. I started having neck
pain immediate3ly.An x-ray showed t that the
fusion at C5/6 was broken. An MRI demonstrated a
herniated disc at C3/4and at C6/7. |
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In August, 1993, Dr. Henry Bolhman at
University Hospital in Cleveland , Ohio , did an
anterior decompression from C3x to C7 followed by the
insertion of a fibular bone graft.. I gradually improved
and in one year had an excellent result with normal
strength and balance.
In December, 1996, I developed severe weakness in my
legs along with loss of balance. A diagnosis was not
made. All laboratory studies were within normal limits.
After six weeks this weakness in my legs returned to
normal and the loss of balance improved considerably.
In a November, 1990,I had cardiac bypass surgery.
Following this, I suffered a recurrence of the weakness
and loss of balance in my legs. I was told by my
surgeons that this was not unusual following it the
harvesting of vein grafts. After waiting one year for
return of function,. I saw Dr. Linton Hopkins at Emory
University . He thought that I had suffered a cerebellar
stroke during the bypass surgery. However, an MRI of the
brain showed no sign of a stroke. An MRI of the cervical
spine demonstrated continued stenosis of cervical spinal
cord in spite of the surgery Dr. Bolhman had performed
for this problem. A posterior decompression from C2 toC7
was done.
After this surgery. I continued to have weakness in my
legs and loss of balance. I had to retire from the
active practice of orthopedic surgery. Multiple MRI’s
and CAT scans of the cervical spine showed that the
cervical cord had returned to normal. In spite of this,
I continued to get worse. Finally, Dr. Jed Lewis made a
diagnosis of spinocerebellar ataxiaS in 2006.
Dr. Zack Hall who was a high school, college, and
medical school colleague has had recently been appointed
as head of the California Institute of Regenerative
Medicine byvernor Swartzneggar.He is responsible for
issuing grants totaling $3 billion over the next 10
years under California's stem cell program. I talked
with him and found the spineocerebellar ataxia is so
rare that it has attracted very little interest in these
stem cell field in the United States . Zach referred me
to Dr. Huda Zoghbi in Houston , Texas . Dr. Zoghbi is a
professor in the neurology department at Baylor School
of Medicine as well as a Howard Hughes Institute
investigator. Dr. Zoghbi had me undergo many blood and
urine tests. All of these were normal, indicating that
there was not a medical solution for my form of
spineocerebellar ataxia..
For this reason, I began scanning and searching the
Internet to find a program of stem cell therapy for this
degenerative disease. After a prolonged search I found
that China had treated more patience with
spineocerebellar ataxiia than any other program. I was
also able to talk to patients in Canada , who had been
treated in China..
At this time, I am preparing to go to China on the 28th
of March. My goal is to be able to walk 10 to 15 yards
without assistance of any kind. . If I were able to do
that, I would be able to return to a part time practice
of office orthopedics. I greatly miss practicing and
seeing patients. Even if I made a full recovery. I would
never be able to return to surgery as Archbold Hospital
has age restrictions that one cannot carry out surgery
after the age of 70. I think it is ironic that you
cannot carry out surgery after the age of 70 but
Archbold requires you to take call in the emergency room
and stay up all night multiple times until one is 62.
My ultimate goal would be to return to playing golf. I
miss the chatter and kidding that takes place among
golfer. On a golf course there is a definite camaraderie
among participants, regardless of age. Though he is now
dead, I can remember Bobby Wilson playing. Even at the
age of 85, he was joking constantly with his dry wit,
poking fun at himself as well as the group and having a
wonderful time doing it.
Stem cells may not help, but I will know that I have
tried everything to battle this degenerative disease
MY TRIP TO CHINA
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MAY 2nd UPDATE
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China Trip
April 7, 2007 Update
by Dr. John Payne |
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Our trip to China has been both
eventful and pleasurable at the same time. We
left Atlanta after both having a cancelled
flight and delayed flight which caused us to be
over three hours late arriving in Chicago . We
thought we had missed our plane to Tokyo but
that plane was also delayed by three hours due
to the terrible weather in the windy city. Once
our transoceanic flight began we were treated
royally by the American Airline personnel who
provided us with excellent food and care.
Arriving in Tokyo American personnel had us
directed immediately and we were able to make
our connecting flight to Hong Kong . The
Japanese were again excellent and had a bowing
contest with Will at the end of the flight. The
head flight attendant kept bowing to Will and he
returned the favor after a few seconds Will
stopped first and the contest was finally over.
A small wheelchair attendant met us off the
plane in Hong Kong . Both Will and I had our
doubts that she would be able to push so much
weight through the airport. To our surprise she
was able to push us through Customs and
Immigration without slowing down. We then
traveled through one of the most beautiful
airports in the world and exited to meet a
driver from the hospital who had been waiting
for three hours. He rapidly placed us in his van
and started through Hong Kong where they drive
on the wrong side of the road, like the British.
However, when we reached Schenzen he had to
switch to the right side and start driving like
an American. This was now after midnight . The
hospital provided us with accommodations at a
luxurious hotel across the street from the
hospital. The service was superb as we were
served a warm snack in a dining room while our
room was prepared for us.
The next morning we were taken to the hospital
by wheelchair and foot. Once reaching the stem
cell treatment floor we were gratified to see
such modern design and cleanliness. The staff
immediately began taking excellent care of us.
Within two hours we were seen by a young female
physician who spoke some English. She carried
out an excellent neurological examination and
ordered physical therapy to begin that
afternoon. Blood tests were also drawn and I was
given my first stem cell growth hormone I.V.
injection. These were to be given daily in an
attempt to stimulate to form the neurological
cells that had degenerated in my cerebellum. The
physical therapist started a routine that is
aimed at improving the patient’s balance. That
night we ate in the café which is one the
hospital’s first floor. As I have explained to
some of my friends the hospital does not provide
food. Will has now become the number one chef of
room number 1420 as we do not wish to try the
hospital’s café again.
Saturday continued to be an extremely busy day
with multiple routine tests done. These included
both an echocardiogram and an ultrasound of my
heart. While lying on the exam table for these
to be done, the young female attendant who was
accompanying us tapped my belly and made the
comment that I must drink a lot of beer. I was
so flabbergasted that it took me least thirty
seconds to respond.
Physical therapy continued on Saturday with one
in the morning and one in the afternoon. The
afternoon session consisted of traditional
e-stem to the quadriceps and the anterior tib.
This was followed by traditional Chinese
medicine. The treating therapist placed needles
in both my arms and legs. I knew then what
acupuncture really means. After the session was
over we had the rest of Saturday and Sunday off.
We needed to catch up on jet lag so we did not
go sightseeing on Sunday. We were just too
tired.
On Monday the routine began again. As in America
, the head of the department saw me on Monday,
three days after my arrival. However, he was
extremely thorough though we had some problems
with the language barrier. Again the therapists
concentrated on balance along with reciprocal
movements. I was in the parallel bars or on the
balance board for what seemed to be hours. After
this I had been scheduled for OT for the tremors
in my hands. This went nicely. A speech
therapist was to work with me on my voice but
cancelled this when she realized I had a
titanium plate in my neck.
The next day was the start of Chairman Mao’s
revenge as far as Will was concerned. My
activities were the same but Will went out for
vegetables. He decided to eat a salad for lunch.
The women on the floor thought he was crazy for
eating anything raw. Will laughed at them and we
went out for dinner that night. A Scottish
couple was leaving the next day. He had come
with ataxia and on a walker like me. He was
walking out of this hospital. We went to an
excellent Italian restaurant with great food and
superb wine. All during the meal Will was most
enthusiastic. After we came home, Will was fine
until about 6 in the AM. Chairman Mao then
caught him and he started running from both
ends. Wednesday was probably one of the worst
days of his life. He tried to continue to help
me in spite of his disease. Initially he tried
to blame it on the Italian food but he soon
realized he was the only one sick. About the
middle of the day he suddenly thought about the
women who thought he was crazy to eat raw food.
All vegetables in China must be cooked in some
fashion. Finally after a great deal of Pepto and
Immodium he triumphed over his distress.
While Will was ill I consumed peanut butter
sandwiches and bananas. I could not go anywhere
and did not have enough sense to ask one of the
women on the floor to order for me.
On Thursday I received my first stem cell
injection. I slept through most of it as I was
fatigued from the previous two days. Will was
feeling better and went to the hospital café and
obtained a sandwich. I ate only half of it, but
on Friday it gained my attention. I did fine in
my morning physical therapy, even walking
without hands in the parallel bars. My afternoon
treatments were interrupted by sudden urges. I
was forced to the Immodium bottle. That night
Dora, one of the Company employees, ordered for
us. In spite of our difficulties, I had eel
while Will had dumplings. It was the best food
we had had since Tuesday night.
Saturday is just another day in China . We
started in physical therapy again this AM.
Dr.Yong, the chief, again evaluated me early in
the session. I think he may be as confused as
the doctors at home. I think I just have a
mixture of diseases and not a straightforward
one. Anyway, therapy continued with me walking
in parallel bars and then on a treadmill. When I
walked on the treadmill without holding on, I
thought I would break my head or my ass, I
wasn’t sure which one would go first. In the
afternoon I received my first treatment for my
voice with acupuncture since they could not use
the other machines on me. I felt strange
submitting to this, but I am to the point that I
will try anything that I do not believe is going
to harm me.
At the end of the first week I am encouraged. I
have seen many ataxic patients who are much
younger than myself who have made dramatic
improvement. All of these had the inherited
type. I just hope that the acquired type will
respond as well.
I am scheduled for my second stem cell injection
on Monday It will be the first one given
intrathecally. Hopefully my response will be as
good as those with the inherited type.
MY TRIP TO CHINA
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MAY 2nd UPDATE
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China Trip
April 14, 2007 Update
by Dr. John PayneThe second week in China
has been similar to Ray Milland’s Lost Weekend
back in the fifties. The only trouble is this
was not induced by alcohol.
|
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Last Saturday night Doctor Yang
came to the floor and wanted to speak with me.
At nine o’clock he took me to the conference
room and started to explain things about the
diagnosis of spinocerebellar ataxia. The ward is
filled with patients with SCA from all over the
world. He said that my x-rays did not fit the
pattern nor did my physical findings. He showed
me x-rays of most of the patients on the floor
and the images were entirely different from
mine. My cerebellum was intact ant there was no
atrophy of the brain stem. He then went over my
physical findings which indicated I had
difficulty from the old spinal cord injury. He
also pointed out the physical findings that
pointed towards my brain rather than rather than
the brain stem. He then started reviewing all my
x-rays making digital pictures of important
ones. Finally he scanned my brain MRI that was
ordered by Dr. Hopkins of Emory in 1999. Dr.
Yang was surprised that no one saw the multiple
small infarctions in the brain. The infarctions
are due to the diabetes and the bypass technique
that was used. In his view an MRI should have
been done the next day when I had extreme
difficulty walking. He was impressed with Dr.
Frederick’s posterior decompression, but he did
not think much of Dr. Bohlman’s surgery that was
done in 1993. He thought the alignment was poor
and that this placed excess pressure at C6/7 and
predisposed the cord to myelomalacia. However,
the main problem was the multiple small infarcts
in the brain caused by diabetes and reduced
blood pressure after bypass.
He recommended that I still try the stem cells
though they were not as successful in
infarctions as in SCA. He also wanted me to be
evaluated by a neurologist from Mongolia on
Tuesday. We talked until after midnight. For
some reason he could understand my English and
what little Chinese I had picked up. I was able
to understand his English. He is chief of the
stem cell department as well as chief of
neurology. For this he is paid 10,000 RMB per
month which is about $1400. I wish I could bring
him with me as he really cares about patients.
Sunday was to be a day of rest. The Chinese work
six days each week and do most of their shopping
on Sunday. We took the day off and went to some
of the malls. Buying anything is an experience.
You immediately start at one quarter of the
price that is quoted and bargain from there. You
even walk off and have them come after you. Will
was buying some tea and the small salesgirl
disappeared. We waited and then left. Within ten
minutes she found us in the massive throng. When
we want back the girl served Will several
different kinds of tea making up for a Chinese
faux pas and enticing him to buy many more kinds
of tea. He even had our picture taken with them
and was about to invite them to dinner.
Our next stop was to be the nicest restaurant in
the mall. We went to the fifth floor where the
restaurant was very colorful with pink curtains
and pink tablecloths. Even the waitresses wore
three buttoned coats which were the same color.
The head waitresses had a take off of a tuxedo
or very formal wear. After being seated will and
I enjoyed our first gin and tonic inside the
Republic of China. After battling the throngs
that we did we should have four or five more to
quite our nerves. The head waitress then took
our orders. Everyone was wise except me. Will
and the others in the group mainly ordered
cooked vegetables specialties. The waitress
explained to me that Peking Duck was one of the
specialties of the house. Thinking that a duck
in China was similar to a duck in America I
ordered the supposed specialty. All of the
veggies were served and we were definitely
enjoying them. The chef then came down the main
isle of the restraint pushing a cart carrying
this glazed roasted duck. He then carved the
duck in a manner that was unknown to us poor
Southern American rednecks. The carving of the
duck was very strange as he mainly removed the
skin and the quarter inch of meat directly under
the skin. The main portion of the duck was taken
away and the skins along with some small
pancakes were placed on the table. Will ate one
piece and then decided Peking duck was for Mao
and Nixon. My first taste was something that I
had never experienced. It was as if I was eating
pure cholesterol. I then folded the duck into a
couple of pancakes and ate two of these. After
that I decided I could eat two more. The others
in the group pronounced themselves vegetarians
after seeing what had been done to the duck. We
left without taking a doggie bag.
We finished shopping and returned to the
hospital in a van. The drive back was very
exciting as the Chinese are more daring and have
better nerves that any of the New York taxi
drivers. After missing collisions with two or
three of the buses and multiple vans we arrived
back at the hospital alive. I felt queezy but I
thought this was due to the ride and terrible
pollution. However, thirty or forty minutes
after I was in my room I had an attack of
Chairman Mao’s Revenge that was probably
enhanced by Chou En Liai. I have never
experienced such diarrhea in my entire life.
While sitting on the porcelain throne I suddenly
began belching from the deepest recesses of my
gut. Will was barely able to retrieve a covered
trash can to place before me. For the next ten
minutes I did not know whether the strongest
stream came through my esophagus or through my
large bowel. After approximately two hours of
this the nurse called an intern to evaluate me.
It was a good thing that Will was with me rather
than Mary Ellen with her sympathetic vomiting
reflex we would have needed two porcelain
thrones in the room -- one for me to be seated
on and one for her to hug. I kept murmuring and
begging for phengeran, wishing I could say it in
Chinese. Instead of a muscle injection he
ordered the nurse to give me three pills. We had
already tried to swallow some Imodium but I
could not keep these down more than just a few
seconds. He quickly left before the nurse gave
me the pills, unfortunately the Chinese pills
have the same effect on me as the Imodium.
Diarrhea and vomiting continued for the next
eight to nine hours. Finally around seven thirty
the following morning I received an injection of
phengeran. After this I thought I might live but
I did not know if it would be worth it or not.
I was unable to attend physical or occupational
therapy but I did receive multiple I.V.’s trying
to re-hydrate my dried depleted body. The next
day I was able to go to occupational therapy but
the work in physical was out of the question.
That afternoon I was scheduled for my second
stem cell injection which could be given if I
was not running a fever and had a normal white
count. My temp. stayed normal all during the day
and my white count was below nine thousand and
so I received my stem cell injection that
afternoon.
On Tuesday, Doctor Yang brought in a consultant.
Looking at her I thought that I was seeing the
reincarnation of Genghis Kahn. She was obviously
from Mongolia with the highest cheek bones I
have ever seen. Her hair and eyes were
piercingly black. She did not speak English but
spoke to me through an interpreter. She then
performed the most thorough neurological
examination that I have ever experienced. After
she had finished the doctors retreated to the
conference room again looking at all of my
x-rays. She agreed with Doctor Yang that the
main problem stemmed from diabetes and its
effects on the arteries in my brain and nerves
in my feet and hands.
She agreed with the treatment giving me I.V.stem
cells at the present time. She did mention that
there was another hospital in Northern China
which specializes in the treatment of diabetic
foot and hand with stem cells. Will and I had
already seen pictures of cures of diabetic foot
and leg where the patient had been treated with
stem cells. These were limbs that would have
ordinarily been amputated. Though I do have
diabetic neuropathy and early vascular changes I
would rather wait to have this treatment on a
later date. On Wednesday and Thursday, both
physical and occupational therapy were subdued.
The therapists took pity on me and kept it very
light. On Thursday night I thought I was
starting to join the living and went to the
Italian restaurant again. Will had lasagna while
I had salmon fettuccini with very little cream.
I was able to eat about a third of this before
feeling nauseated. The food was so good we did
use a doggie bag and Will was able to enjoy it
for lunch the next day.
Friday was the beginning of a good day. The
therapist worked with me in the morning but the
afternoon was devoted to me receiving my third
stem cell injection. During the I.V. injection
Will and I noticed that I again became extremely
light with a blood sugar level of thirty eight.
What was ironic that during the second infusion
of stem cells my sugar level had dropped to
forty one. Whether any of these stem cells are
working to produce insulin is a mystery to me.
The ordinary treatment for diabetes is to
aspirate your own bone marrow and culture
autologus stem cells and then inject them into
the blood supply of the pancreas. However I have
been using about half of the amount of insulin
that I usually use at home. So maybe something
good is happening.
I am extremely happy I am receiving I.V. stem
cells rather than intrathecal stem cells. At
least three of the patients have had severe post
spinal headaches. In America these patients
would have been treated with a blood patch over
the hole in the spinal membrane so as to stop
the leakage of the spinal fluid. This will stop
the severe headache and projectile vomiting that
some of these patients endure. In China no one
seems to know about a blood patch. They just put
the patient flat and give them multiple I.V.’s
hoping sooner or later the hole will heal on its
on.
On Saturday Will became the center of attention
in the physical therapy department because of
neck discomfort he wanted traditional Chinese
medical treatment. The therapist had large clear
glass cups that she heated with some type of gas
flame. After heating one of these she would
apply it to Will’s upper back. Glancing over at
Will it looked as if he had several glass
telephone insulators attached and aligned down
his back. After approximately fifteen minutes
she removed the cups and had Will sit up and
then inserted an ungodly number of acupuncture
needles in his upper back and neck. I thought I
looked strange when she inserted three needles
under my chin but I could not match Will. Every
ten minutes she would come in and twirl the
needles a quarter of a turn adjusting the
intensity. After at least thirty minutes she
finally removed the needles and Will claimed his
neck felt much better. To me it was like having
someone remove their finger from pushing on my
eye. I know that it would feel better.
My therapy was better on Saturday than it had
been all week long. I really believe I lost
ground. I am hoping I will be able to make it up
our last two weeks here. The one thing I did
notice after the third stem cell injection was a
much better feeling in my legs and feet.
Hopefully this will continue.
The one thing that I would urge anyone who is
coming here is to bring their own phenergan
injections and know how to give themselves an
I.M. injection or teach their care-taker how to
give an I.M. injection.. It will save you hours
of misery.
MY TRIP TO CHINA
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APRIL 22nd UPDATE |
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MAY 2nd UPDATE
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China Trip
April 22, 2007 Update
by Dr. John PayneOur third week began with
a day with no therapy or other responsibilities.
We had talked to one of the girls who helped
with the translations between us and the medical
personnel , Cherry, who is a 28 year old
intelligent beauty and she agreed to meet us
here at the hospital at 9 A.M. and take us to
the local tea house. |
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| We were soon in a taxi
racing through crowded streets. The Chinese work
six days each week so the city is very consumed
with people escaping or enjoying them selves on
Sunday. After about thirty minutes, we reached a
building across the street from a railroad
station. To my consternation, there were two
long flights of stairs. As I looked, I told Will
that I was going to find out if my improvement
was real or not. I got out of the wheel chair
and walked to the second floor holding to the
rail with my left hand. When I made the second
floor, I wanted to let out a yell that would
equal any of my children’s college chant “War
Eagle” After we gathered things back
together, we started an exploration we will
never forget. There were teas of every kind
throughout the floor. After looking at one
store, we stopped to inspect different teas that
were in large bags that looked like burlap sacks
from home. The women running the shop
immediately brought out different types of tea
and prepared them in the usual Chinese fashion.
The small cups conquered my palsy so Will and
Cherry had to hold my cup as I drank tea for
headaches, abdominal pain, and rheumatism. After
45 minutes or so we moved on. In America, if
someone spent that much time with you, they
would be angered that they had not made a sale.
Instead she just smiled and asked us to come
back after looking around. We looked at
multiple teas smelling all of them. Cherry then
brought us to a stall where they served Jasmine
tea. This was delicious, and the small tea
leaves had been wrapped by hand in the form of a
ball. When this was dropped into water, the ball
opened presenting a beautiful flower along with
an excellent tea. The young lady told us tea was
like whiskey, the longer it aged the better it
was. She then prepared some tea that was
eighteen years old. I agreed with her that this
was some of the most delicious tea I have ever
tasted. Will, Cherry and I bought tea at this
stall along with some small items. We
continued our tour inspecting teapots that were
valued in the thousand of dollars in spite of
the great exchange rate. This is one of the few
places in the world that the dollar is still
worth something. Cherry’s friend had arrived at
her stall where we bought some items for
relatives at home. We then received an excellent
25 year old tea that was superb. We continued to
chat until about noon when we finally decided we
needed lunch. The trip down the steps was easy
and many people helped with lifting my
wheelchair to the street so we could catch a
cab. After a short distance, Cherry dropped
us at a mall. Just entering, I could not believe
the architecture and lighting. It is probably
one of the most beautiful malls I have ever
seen. Will and I wandered around shocked at the
stores. There were no Chinese stores, all were
branches of German, British, French, Japanese,
or New York companies. I also could not believe
the prices; for after you divided by seven, the
price was higher than New York. The tariff the
Chinese place on foreign goods is tremendous.
However this is not slowing the consumers. Most
of the stores were extremely busy while there
are Mercedes and other luxury cars
everywhere. Cherry had instructed us to go
to the fifth floor to find restaurants. There
were many but we decided on a beautiful Thai
restaurant. The food was excellent and again
very cheap compared to the same thing in
America. We them resumed our trek through h the
mall amazed at all the different stores and
countries represented. Looking over the balcony
of the fourth floor, we saw one of the most
beautiful in door ice skating rinks in the
world, easily equaling Rockefeller center. The
rink was on the third floor. Will really wanted
to skate, but there was a line of Chinese at
least two blocks long. I suddenly began to
have the sniffles, probably catching a cold just
being that close to the ice. We returned to the
hospital and had our peanut butter sandwiches
for supper since we had eaten so much at the
Thai restaurant. The Monday was typical.
Physical therapy started with no new exercises
but plenty of balance board work. We were also
working in the parallel bars without hand
support. Finally, I advanced to a slow treadmill
which was the pure devil trying to walk on
without holding on. This fatigued me faster than
anything I had tried so far. The afternoon was a
repeat of previous afternoons of acupuncture and
nerve stimulation. That night we again traveled
to SeaWorld and were able to discover some
delicious Lebanese food. At least it agreed with
my stomach. We spent an enjoyable evening
talking .with a young Chinese waiter, Jason,
about the history of China and the US. For
someone who had wasted three years of his life
playing computer games, he sure knew a great
deal about his country and its relations with
America. Tuesday was a typical day in
Shenzen. We awoke with a wonderful breeze off
the ocean but it was still cloudy. Our breakfast
was usual with Will feasting on the Lebanese
leftovers of the night before. I had my usual
peanut butter toast and diet Coke/. Not healthy
but I don’t get sick. Rehabilitation was the
same with me becoming angry because there is not
enough of really forceful therapy. I firmly
believe that if you are retraining muscles or
using those you have not used during an extended
period it will take forceful therapy to improve
the function. I just can’t get this idea across.
I am going back to the gym and doing work on my
own. When this is not permitted I feel angry
because of the time and money I have put into
this. Will backed the hospital on this so I
was really miffed with him. After rehab that
afternoon, I wanted to get a hair cut. We walked
about three blocks from the hospital and found a
barbershop. As we walked in we were immediately
taken to a chair. A purple gown was wrapped
around us and a young girl began washing our
hair. After ten minutes or so, Will walked but I
was taken to a bed. There was a padded collar to
support the neck and further washing and rinsing
continued. I thought this might be special for
the dirty Americans but I noted that all
customers were treated the same. After thirty
minutes of this, she moved me back into a chair.
There she began to massage my head, neck and
shoulders. This lasted for about twenty or more
minutes. At this point Will was finished, but I
then sat while the barber cut my hair. As I
watched, Will paid the bill which was $4 for him
and $7 for me. I have never felt so good after a
visit to a barber shop. That night we ate in the
hospital telling everyone about our good
fortune. Wednesday I was supposed to
receive an injection of stem cells. For some
reason this was delayed and I was rescheduled
for Thursday. The day was the usual rehab with
nothing breaking the routine. That night we
decided to go into SeaWorld again. I think that
I have described the area before. Helen and Eric
went with us to a fantastic Japanese restaurant.
Unlike the states, you were given a menu that
was at least sixteen pages long. You had a much
wider choice than chicken, shrimp or steak. We
could pick out mussels, oysters, steak, or just
about any food and it was prepared in front of
us. For the grand sum of $15 you could have all
you could eat and drink. Eric had been having
severe muscle spasms. The beer quieted theses
and he was able to get the best night of sleep
that he ad in ten days. Will just continued to
order steak after steak. The poor boy had not
touched beef in weeks. We did skip the flaming
ice cream dessert. The ride back to the
hotel was great as usual. These guys are the
most courteous and competent of any drivers that
I have ever seen. In spite of heavy traffic and
high speeds, I have yet to see road rage from
anyone. Thursday was again a typical rehab.
The morning was short as I had only thirty
minutes of physical therapy. I still believe in
the axiom of no pain, no gain that is not the
manner of things here. That afternoon I received
my fourth stem cell injection so I remained
quiet that evening. Will went out and brought
back some more Lebanese food. On Friday we
resumed physical therapy with a vengeance. I was
able to stay on the balance board for almost
three minutes. I also walked unaided in the
parallel bars. I really want to try to walk in
the room without the bars. That night we
had probably the most fun we have had in
Shenzhen. We went to a local seafood restaurant
only three blocks from the hospital. The bead of
our contingent spoke Chinese and was able to
immediately get us a table using my diabetes as
an excuse. My sister used the same routine in
Biloxi. We were served food immediately and
after a few bites we needed to go examine the
tanks and pick out the fish we were going to
eat. I picked out a grouper while a Hong Kong
friend decided on another white fish. The fish
was cooked with steam never touching the water.
When it was almost done it was placed on a
plate. Hot oil containing ginger and scallions
was then poured over the fish to finish cooking
it. This was some of the most delicious fish I
have ever eaten. After dinner the crowd
decided to explore the night life of Shenzhen. I
was going to beg off as they had to push me in a
wheelchair. At the cabaret, the people rushed
out to lift me up the steps and place me on a
stool. I think they thought I was a rich Arab. I
could not believe a seventy year old man in a
wheel char being treated so well. The Chinese
have a respect for age that you never see in the
states. After a while the crowd brought me back
to the hospital. Will continued with the group
exploring Chinese discothèques. He had a great
time but returned long before the
others. Saturday was quiet with the usual
physical therapy as well as acupuncture. Though
Will believes that it helps, I feel it as a time
to nap. Saturday night we ate in the hospital on
some leftovers and more Japanese food. Sunday
would be the start of our final week.
MY TRIP TO CHINA
| APRIL 7th UPDATE |
APRIL 14th UPDATE
APRIL 22nd UPDATE |
APRIL 27th UPDATE |
APRIL 22nd UPDATE |
MAY 2nd UPDATE
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China Trip
April 27, 2007 Update
by Dr. John PayneSunday of our final week
was nice. We were able to sleep to nine o’clock
rather than getting up at six or six thirty.
After a prolonged breakfast of cereal or peanut
butter toast we decided to go to the railroad
mall to finish buying souvenirs for folks back
home. The taxi drive was swift, but as we neared
the mall the line of taxis was at least six
blocks long. |
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We finally reached the mall which
also serves as a rail station and metro station.
There was enough English on the signs that we
did not got lost. We knew where we wanted to go
and arrived there quickly. The girls running the
stall remembered us. After picking out numerous
souvenirs, the head girl gave us a price. Will
has taken lessons in bargaining and offered not
one half, but one third of what she had asked
and held to it. After long bargaining, we
obtained then gifts for what Will first offered.
We then visited a second stall. Again, Will
bargained like a true Chinese. We had finished
our shopping and returned to the hospital.
Will and I had been suffering from colds so se
again stayed in the hospital. One of the nurses
again ordered supper for us. It was delicious
and I again did not get sick from the food. I
wish that I had never ventured to eat that duck.
Monday was to be my first spinal injection of
stem cells, the rest being IV. We did go to
physical therapy that morning and things wet
well. If you are going to have stem cells that
day, you do not go to therapy that afternoon.
Also they do not wish you to eat after twelve
noon. I did continue to drink a great deal of
water. At about 4:15 they wheeled me into a
modified operating room. The doctor showed me
the needles they were using. They were 22 gauge
needles so I agreed to go ahead with the
procedure. I never knew the needle went in and
the stem cells were soon injected. The procedure
took less than fifteen minutes. IK was then
wheeled back to my room where I was to stay flat
for six hours. Will went out to socialize and
the IV ran out. The nurses had to stick me again
which hurt worse than the spinal Will went out
to dinner with Cherry and Dora. I stayed flat
but was unable to force fluids because of the
position of the water bottle. Also I could not
reach the nurses” button. Will returned with
frog legs and rice soup. I was more interested
in water and getting up to urinate. Will was
concerned that only five hours had elapsed and
wanted me to at least try to pass my water while
in bed. I haven’t been able to do that since I
was a teenager. I stood up and stayed up.
Fortunately I did not get a spinal headache.
Tuesday was a terrible day. We awoke to
thunderstorms and it rained all day. My morning
therapy went well and I am going to get a cane
to start using. I still could not turn rapidly
but I could walk over 100 feet using a cane. At
lunch two spine specialists from the states were
visiting. I explained that my head tremor was
better, that my legs especially my feet, felt
much better. I explained that I had tried to use
a cane at home but was unable to balance or walk
with it. Now I was able top walk short distances
without anything. This afternoon was the usual
rehab. Since it was raining so hard we again had
one of the nurses order for us.
One of the most remarkable cases has been a 39
year old Canadian. When he arrived Sunday he
could walk but he would bounce off the walls. On
Monday he could not go up and down stairs
without holding on to both rails. He had his
first injection on Monday afternoon, and on
Tuesday he was walking in a straight line, going
up and down stairs without holding on, and could
get out of a chair with ease. A spinal injection
of stem cells had been done on Monday. The
results so quickly were astounding. Most cases
are not like this but it is great to see one
with such joyous results.
MY TRIP TO CHINA
| APRIL 7th UPDATE |
APRIL 14th UPDATE |
APRIL 22nd UPDATE |
APRIL 27th UPDATE
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China Trip
May 2, 2007 Update
by Dr. John Payne
The last four days in China were
as enjoyable as they could possibly be.
Wednesday morning the weather was stormy like
Tuesday. Suddenly, while I was in physical
therapy, the skies cleared and the sun was
finally out in Shinzhin. The breezes also
started to come off the ocean, cooling the
temperatures.
Home
Again, Safe and Sound! |
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Physical
therapy was the same. Jundi pushed
walking in the parallel bars without
any support even stepping over
wooden rods placed at varying
distances apart. For some reason
this exercise was very tiring. We
then started playing catch and throw
with a soccer ball which not only
forced me to balance but tired my
upper body quickly. This was
followed by the balance board which
really fatigued the old man. After
OT I resumed working on the
treadmill followed by raised
platform exercises and finally
ending with squats. The afternoon
was the usual routine of electrical
stim followed by acupuncture. The
latter has become my nap time.
For dinner that night we
took out my therapists. We asked
them to take us to the best
restaurant in Shinzhin. We took a
cab from the hospital for a short
distance. When we stopped, I opened
the door and was greeted by the
sight of four lovely women in the
tightest red evening dresses I have
ever seen. As they advanced towards
us, our therapists waved them away.
We then went up a flight of
escalators and I was greeted by
about ten women dressed in the same
attire as on the first floor. I
looked up and saw a sign advertising
the Red Dragon Room. I started to
wonder what kind of problem these
young therapists were setting up for
us. Again, they waved all of the
beautiful young ladies away. We
then took an escalator to the third
floor where there was a beautiful
restaurant with the ladies dressed
in mock tux tops and long skirts.
We had arrived at the
Bar Harbor restaurant. We then had
the finest Chinese meal that we
enjoyed during our stay in Shinzhin.
Abalone was superb especially since
I had not enjoyed any since the
early 1980’s in San Francisco .
Next we had an appetizer that was a
small mussel called an elm. Then
came multiple dishes such as beef
ribs, tofu and mushrooms, some type
of Chinese soup with shrimp and
noodles, and shrimp balls. Finally,
I guess to clean the palate, a dish
of Chinese vegetables was brought.
During this entire time, Will and
Jundi had been constantly drinking
tea. We took a taxi back to the
hospital Once we got on the elevator
to the 14th
floor I saw Jundi and Jade running
down the hall towards the staff
restroom. As soon as we got off on
the 14th
floor, Will almost galloped down the
hall to rid himself of all the
excess tea.
Thursday was the usual
day. There were no changes in PT,
and OT was the same. Friends from
Fort Lauderdale and
Canada decided they were ready for
the Japanese restaurant. The
Canadians were ready for steak; they
and Will ordered multiple small
filets. The steaks were delicious
and everyone finally managed to get
their fill. The owners of the
restaurant finally brought a sign
and pinned it on Conrad’s father’s
chest. The sign proclaimed him as
the world’s greatest beef eater. We
made it back to the hospital late.
Friday was to be my last
stem cell injection. I planned to
undergo a spinal injection, but my
thoughts turned me towards an IV.
The spinal injection on Monday had
been very easy thanks to the young
Dr.Yang. However, as I thought
about it, all I could think about
were complications. If I were to
get a spinal headache, then our
flight home would be delayed. I
would never board a plane with a
spinal headache. Also I evaluated
the last four days and could not
determine that the spinal had given
me greater relief than the
intravenous. I was so anxious to
get home that I decided not to take
a chance and went with the IV route.
Will had planned to go
to a local DJ’s club but decided
that he was too tired. Also Irene
the nurse had continued to turn down
his offers to take her dancing. He
went to watch a movie, forgot about
dancing, and fell asleep on the
couch in the common room. Sometimes
during the middle of the night, he
made it back to the room.
Saturday was to be our
last day in China .
Will had finished most of the
packing that morning with just a few
odds and ends to pack that night or
early Sunday morning. I had my last
breakfast of yogurt and peanut
butter toast. Sounds terrible, but
it did not make me sick. Will
finished his cereal. We headed to
PT; it also was unchanged from any
other day. During lunch Will
finished putting food in the common
room or giving it to other
patients. Some were really glad to
get such items like mashed
potatoes. W e also gave away a
great deal of popcorn. After eating
leftovers for lunch for the last
time we headed to my last day of
acupuncture. Though Will believes
in alternative medicine, I stayed
with the traditional Chinese
medicine to follow the routine. I
took my last nap with needles
inserted in my arms, legs, and
chin. When I awoke, all needles
were removed. We said our final
goodbyes to all the therapists and
returned to our room. My haircut two
weeks ago had been one of the most
enjoyable experiences I had in China
. I convinced Will that we needed to
return to the barbershop. However,
as we started to leave, Lillie,
Will’s ideal Chinese woman, came to
our room. Before I knew it, I
thought he was going to stuff her
into a bag to take home. Suddenly,
we had multiple pictures. After
much coaxing, Will and I left for
our last exotic experience in China
, the barbershop. The routine was
the same as before, and left both of
us with warm feelings towards the
Chinese. We then joined friends
from Canada and the US for an
Italian feast in China .
After returning to the
room, Will finished our packing
except for shaving equipment. We
awoke the next morning at four,
showered, shaved, and finished
packing everything. Our driver
appeared about twenty minutes early,
so we left at 4:40 .
Maggie the nurse saw us off
following us and giving last minute
hugs at the elevator. Kevin, a
patient from Australia who now lives
in Thailand , had left at two AM .
It seemed a little depressing that
we were not able to see so many of
our new friends at the last minute.
The early arrival of the driver
proved that someone was watching
over us. It took nearly thirty
minutes to pass the initial
checkpoint between mainland
China and Hong Kong . Once
through all the checkpoints w e went
straight to the airport. Air Japan
said that our plane was getting
ready to leave. Our flight three
hours later had been cancelled.
They held the plane until we
boarded, closed the doors, and
pulled away from the gate. We then
started our trip to home which was
halfway around the world.
The flights were uneventful and Mary
Ellen met us at the
Atlanta Airport at 9:35 . I showed
that I could now walk a small amount
which thrilled both ME and Neill.
ME then drove us back to Thomasville
, arriving at 3:30 AM . We were
asleep for about three hours when ME
received a call that her Mom had
been taken to the hospital. ME then
went to the ER where she learned
that her mom had taken a dive from
her bed and had broken her clavicle,
two ribs, and the humeral head. ME
brought her home and she joined me
as another cripple.
As I evaluate my experience in
Shenzhen I marvel at the work that
is being done. To watch the MS
patients, the spinal cord injured
patients, and those with
Spinocerebellar ataxia, I cannot
believe the progress that some
make. Others seem to change very
little, but these are in a
minority. The doctors, especially
Dr. Yang, are superb clinicians
making sure they are treating the
correct disease. The nurses are very
competent and try to make every
procedure as painless as possible.
I do think that a protocol should be
printed out so everyone knows
exactly what to expect rather than
having to repeatedly ask the
nurses. I also think that someone
like Dora who has excellent English
should be trained in medical
procedures she could provide better
communication between staff and
patients. She would also be able to
monitor the medical information
given out by the patient
representatives. From a personal
view point, Dora could get things
done when no one else was able to do
so.
I accomplished my personal goal of
being able to walk a short distance
without help. I hope to improve
over the next three to four months
through continued therapy.
The stem cells have definitely
helped. I have much better
sensation in my feet and better
strength in my legs. I feel
stronger and have more energy. With
the treatment that is being carried
out in Northern Chinua. I hope to
have treatment there later this
year. If they would send me
directions and stem cells maybe I
could treat myself.
The most disappointing part of the
trip is that it contributes to a
negative perspective of science in
our own country. From what I have
seen we are probably ten years
behind the Chinese.
MY TRIP TO CHINA
| APRIL 7th UPDATE |
APRIL 14th UPDATE
APRIL 22nd UPDATE |
APRIL 27th UPDATE |
APRIL 22nd UPDATE |
MAY 2nd UPDATE
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